Share Your Story
Term and Conditions
By submitting your story to the Share your story web feature, you consent to the UAE Rare Disease Society’s collection and use of your personal information for display online and through social media. You also grant the UAE Rare Disease Society a non‐exclusive right to use the material as part of the Share your story web feature, social media channels and other communications outlets, until you withdraw your consent, without any payment or compensation to you. This may include use in non‐commercial promotional materials such as newsletters. You will be contacted for your consent if we plan to use your story, in whole or in part, in any capacity outside of the Share your story web feature, social media platforms or other communication channels.
All your personal data will not be used for any other purposes. You have the right to request removing your story from the Share your Story web feature at any time.
The UAE Rare Disease Society reserves the right to update these terms and conditions at any time.
Join Us and share your Story
Steps to Make your video as link
- Record your video
- Hold and drag on (we transfer website: https://wetransfer.com/)
- Press on Get a link
- Wait until finishing the upload and copy the link.
- Past the link on (inter your video link table)
- Submit Now.
When you share your story with us:
- Recording should be 5 minutes maximum
- Keep your story relevant to the specific theme of the conference
- Avoid repetitive posting. Duplicate stories will not be posted again
- Avoid linking to external sites in your submission. The UAE Rare Disease Society reserves the right to reject any submissions with external links.
- Your story must be authentic, it must be written and owned by you, including any images, text or videos included in your submission. Breaking copyright rules is not permitted. If most of your submission was written or created by someone else, even with a proper credit, it will not be accepted.
- Only selected submissions will be published for public viewing. The UAE Rare Disease Society may edit your submission for length, size, clarity or otherwise to conform to these terms and conditions. The UAE Rare Disease Society cannot guarantee that all submissions to the Share your story web feature will be posted.
- The UAE Rare Disease Society has no obligation to store or archive the input provided by users.
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