Dr. Hussain Maseeh

Social Development & Care Expert

Mrs. Muna Al Yafie

Director of Sharjah City for Humanitarian Services

Dr. Davor Duboka

Patient Engagement Associate Director in Charge of MEAT, CEE, and CIS, France

Ms. Gulcin Gumus

Research and Policy Senior Project Manager EURORDIS - Rare diseases Europe, Spain

Mr. Siju Paul

Dr. Suresh Vijay

Consultant in Pediatric Inherited Metabolic Diseases at the Birmingham Children’s Hospital NHS, UK

Mr. Deaa Darwich

Services Lead for FieldCore, General Electric Company, Qatar

Dr. Sayyaf Almarshidi

Intensive care for adults
Member of the Board of Directors of Fingerprints for support for those infected with hereditary genetic diseases, Saudi Arabia

Mr. Zakareya Alkadhem


Bahrain Sickle Cell Society
Amplify Sickle Cell Voices International –Australia

Mrs. Asma Said Al Ismaili

Family Support Group for Rare Diseases

Ms. Aisha Zaidani

Special Education Support Center Officer, UAE

Dr. Azhar Abu Ali

Senior Clinical Psychologist
Al Jalila Children's Specialty Hospital, UAE

Mrs. Amal Alshamlan

Board Member of Emirates Medical Association, UAE

Mrs. Amal Tolba

Founder of UAE Special needs Mum Support Group & a disability advocate
Founder and Managing Director of HOPE AMC, Dubai, UAE.
A proud mom of a child with special needs.

Ms. Bedour Abdelrahim Alharmoodi

Child Protection Specialist Assistance – Emirates School Establishment, UAE

Dr. Fatma Al Bastaki

UAE Rare Disease Society
Founder and Board Member
Consultant Clinical Geneticist
Latifa Hospital - DHA

Prof. Fatma Al Jasmi

Congress President
UAE Rare Disease Society
Founder and Member
Chair, Genetics & Genomics Department
College of Medicine and Health Sciences, UAEU

Mrs. Fawzia Al Bloushi

Dr. Haitham El Bashir

Head of Neurosciences Center of Excellence, Consultant in Pediatric Neurorehabilitation, Deputy
Medical Director for Clinical Effectiveness and Productivity Al Jalila Children’s Hospital, Dubai, UAE.

Ms. Hiba Yassin

Family Support Group -MPS

Dolores Cvitičanin

Public Affairs Manager of Rare Diseases International

Dr. John D. Phillips

Director of Research and Innovation Abu Dhabi Stem Cell Center Abu Dhabi, UAE

Mr. Jan Joury

Senior Manager, Medical Vaccines, Pfizer

Dr. Khalid Almheiri

Family Medicine, Hamdan
Bin Mohammed Smart University - Dubai,UAE

Mr. Jay Pedrola

Manager Life Support Training-Zulekha Hospital
Regional Faculty-American Heart Association

Ms. Lynn Barghout

Co-Founder, Loulou Foundation Founder/Managing Mum, High Hopes Pediatric Therapy Center, UAE

Dr. Madiha Fathi Ibrahim

Consultant Pediatrician
Al Qassimi Women & Children Hospital AQWCH
Assistant Professor
Sharjah University, UAE

Mrs. Nashmyea Al Feli

An international trainer from the German Board for Training and Consulting, UAE

Mrs. Ola Elkhatib

Head of Inclusion Osraty for Physiotherapy and Rehabilitation, UAE

Mrs. Razna Al Ahbabi

Dr. Ruba Tabari

2. Consultant Educational Psychologist and Advisor, UAE

Mr. Sakher Bani hamad

Occupational Therapist, Medical Director, My Family Center for Physiotherapy and Rehabilitation, UAE

Dr. Zainab Ibrahim

Consultant Educational Psychologist and Advisor, UAE

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