Bachelor's degree in Business Administration
King Abdulaziz University
Writer at Sayidati Magazine
Ms. Abrar Hamed Al-Othman
Ms. Abrar Hamed Al-Othman is an accomplished author with three published books to her name. Her first book, ""In Every Heart There is Life,"" was followed by her second book, ""EB: My Other Half,"" which recounts her personal journey with illness. Her third book, ""Between Us, One Soul,"" further explores themes of connection and spirituality.
In addition to her writing career, Abrar is a contributor to Sayidati Magazine. She is also a prominent figure on social media platforms, where she shares her insights and experiences with a wide audience. Furthermore, Abrar is actively involved in raising awareness about Epidermolysis Bullosa (EB), a rare genetic skin disorder, and is considered one of its advocates.
Founder Wolfram Heroes Association
Father of Twins with Wolfram Syndrome
Mr. Ameen Adnan Almeslimani
Mr. Ameen is the founder of Wolfram Heroes Association, a rare disease Saudi Association. He is a father of twins with Wolfram syndrome. Went into a journey of disease discovery and the challenges of finding a cure and answers. His mission is to raise awareness of orphan diseases especially Wolfram syndrome, extend support to patients and families, and ultimately accelerate the research and clinical tries to achieve the cure.
Child Protection Specialist
Princess Haya Awardee for Special Education
Outstanding Administrative Services
Ms. Anoud Rashed Alkindi
Ms. Anoud Rashed Alkindi has a bachelor’s degree in sociology and social service from Ajman University. She worked as a social worker at Umm Al Quwain Autism Center under the Ministry of Community Development for 8 years, and currently perform the duties of director of the Ajman Center for People of Determination.
She is also a child protection specialist and she have judicial authority as a child protection specialist, and charged with supervising the social service department and social workers in the centers for people of determination and the early intervention units under the Ministry of Community Development for nearly two years.
She won the Princess Haya Award for Special Education in the Outstanding Administrative Services Employee category.
Business Excellence and Engagement Lead
Ms. Aseel Allush
Ms. Aseel Allush is passionate about patients wellbeing, self-motivated with high level of learning agility. Having long experience dealing with HCPs & patients that gave her the chance to have excellent communication, presentation skills & efficient way of delivering scientific information.
Ms. Dalal Al Dhabyani
UAE Rare Disease Society
Dubai Health Authority, UAE
Consultant Pediatric Neurodevelopment
Al Jalila Children's Specialty Hospital
Dr. Hibba Bedri
Dr. Bedri graduated from the Faculty of Medicine, University of Khartoum, then moved to the United Kingdom, where she completed the Royal College of Pediatrics and Child Health Training Program with subspecialty in Community (Development and Behavioural) Paediatrics
Dr. Bedri worked as a Consultant Community Paediatrician at Manchester University NHS Foundation Trust, Trafford, UK before joining the Neuroscience Centre of Excellence at Al Jalila Children’s Specialty Hospital, Dubai September 2022
Dr. Bedri has a wide experience managing autism, attention deficit-hyperactivity disorder, developmental delay and other neurodevelopmental disorders. She recently set up the 1st neurofibromatosis specialized clinic an MDT service in the region
Ms. Masooma Aljasmi is the Head and a Senior Clinical Dietitian. She specializes with Neonatal and Pediatrics Nutrition, Inborn Error of Metabolism, Epilepsy, Celiac Disease and many more.
From 2018 to 2021, she is the Vice President of the Emirates Clinical Nutrition Society - Emirates Medical Association. She has special interest in improving the quality of life of children with metabolic disorders and improving amino acids and ammonia profile to prevent complications and promote growth and development.
Head of Medical Affairs
Dubai Fertility Center
Dr. Mohamed Elkalyoubi
Dr. Mohamed Elkalyoubi is the Head of Medical Affairs at Dubai Fertility Center (Dubai Health)
where he has completed 20 years of service as a Consultant in Obs./Gyn. & Reproductive
Medicine and Infertility. He has more than 30 years of experience in the field. He completed his
education for Medicine in Egypt and has worked in Europe and Australia before coming to
Dr. Mohamed has the respect of his peers and an excellent relationship with his patients.
He has many research work, scientific papers and presentations to his name and is renowned as
a speaker in his field of expertise.
Managing Director of Emirates Advanced Rehabilitation of Children Center
Dr. Mohammed Naser Abdulwahid
A dedicated pediatric physiotherapist with 16 years of experience, has been a driving force in the field for a 10 years in Abu Dhabi. As the founder of Emirates Advanced Rehabilitation of Children, he has pioneered intensive therapy programs, transforming the lives of countless young patients.
Mrs. Monique Lynch, is a devoted and resilient mother on a journey with her son Louis, who has PKU (Phenylketonuria). Balancing the demands of her career as a Chartered Accountant with the intricacies of PKU management, Monique has navigated the challenges of managing Louis’ dietary needs for the past 15 months. Since Louis’ diagnosis Monique has immersed herself in learning everything she can about this rare condition with the help of Louis’ medical team and support from other mothers all over the world. Monique now looks to empower and assist other parents who are facing the complexities of raising children with PKU.
UAE Rare Disease Society
Head of Unit for the Metabolic Genetics Unit
Dubai Genetics Centre
Pathology & Genetics Department
Dubai Health Authority, UAE
Mrs. Nafisa Tawfiq
Mrs. Nafisa is a Biochemistry graduate from the UAE University of Al Ain, who worked for 22 years at the Dubai Genetics Centre, Pathology & Genetics Department- Dubai Health Authority as the Head of Unit for the Metabolic Genetics Unit.
Her scientific academic background as well as her practical experience as chief Laboratory Technologist for many years has proven invaluable in terms of the knowledge and experience of the laboratory’s diagnostics’ tests aspects of the rare disorders.
Currently, Mrs. Nafisa is the Chair President of the UAE Rare Disease Society.
Consultant Genetics and Precision Medicine
King Abdullah Specialized Children’s Hospital
Ministry of National Guard Health Affairs
Riyadh, Saudi Arabia
Dr. Nora AlSaleh
Dr. Nora AlSaleh is a graduate of King Abdulaziz University, College of Medicine. Completed her Pediatric Residency at St. Joseph's Regional Medical Center - Affiliate with New York Medical College, New Jersey, USA; and Medical Genetics and Genomics Fellowship at Stanford University, California, USA.
Currenty, she is a Genetics and Precision Medicine Consultant at Kinh Abdullah Specialized Children's Hospital, Ministry of National Guard Health Affairs, Riyadh, Saudi Arabia.
Dubai Club for People of Determination
Ms. Raisa Alfalasi
Ms. Raisa Saeed AlFalasi is a Member of the Board of Directors of the Dubai Club for People of Determination and a member of the Emirates Society for rare Diseases as well as an employee at the Ministry of Cabinet Affairs. She is also the Chairman of the Organizing Committee of the Dubai Holy Quran Competition for People of Determination, in addition to being a player in the UAE national team of boccia for People of Determination.
She worked as head of the ceremonies and medalists sector for international championships at the Dubai Club for People of Determination and worked as a rapporteur for the General Medical Committee of the Dubai Government at the Dubai Health Authority.
She holds a diploma from the College of Science - Department of Geology UAE University. She also obtained a certificate from the Sports Leadership Empowerment Course 2023, training of trainers (TOT), and a certified life coach.
She also participated as a coordinator in the General Medical Committee’s guidelines where more than 60,000 copies were distributed to Dubai local government employees.
Sharifa Yateem Center of Rehabilitation and
Sharifa Yateem Consulting
Ms. Sharifa Yateem
Ms. Yateem is the first Emirati that is a Board Certified Behavior Analyst and autism expert. She
completed her studies in Masters in Psychology at Trinity College Dublin in Ireland and currently a PhD
researcher. She has extensive experience in working with individuals of different age groups that are
diagnosed with autism. Ms. Yateem also has immense experience in training special educators,
therapists, nannies, parents, siblings, and other personnel in all aspects of teaching children with
Ms.Yateem conducts educational and behavioral assessments, develops clinical and educational
programming, and works with mainstream schools, nurseries and centers in the implementation of
programs. She actively participated as a speaker for both national and international such as TEDX, UAE
Embassy, in France and Germany and as a guest speaker in Association of Behavior Analysis
International in Sweden.
She is the owner of Sharifa Yateem Center for Rehabilitation and Sharifa Yateem Consulting, and
cofounder of ABA-UAE ABAI affiliated chapter. She is also the creator of Tokenat application
that helps to motivate learners to complete tasks in an interactive way. Mostly she is an active autism
advocate on instagram with 12.2 K followers (instagram: sharifayateem)