Share Your Story

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Term and Conditions

By submitting your story to the Share your story web feature, you consent to the UAE Rare Disease Society’s collection and use of your personal information for display online and through social media. You also grant the UAE Rare Disease Society a non‐exclusive right to use the material as part of the Share your story web feature, social media channels and other communications outlets, until you withdraw your consent, without any payment or compensation to you. This may include use in non‐commercial promotional materials such as newsletters. You will be contacted for your consent if we plan to use your story, in whole or in part, in any capacity outside of the Share your story web feature, social media platforms or other communication channels.

All your personal data will not be used for any other purposes. You have the right to request removing your story from the Share your Story web feature at any time.

The UAE Rare Disease Society reserves the right to update these terms and conditions at any time.

Join Us and share your Story

File types allowed only (PDF,DOC,DOCX,MPG and MP4)

Steps to Make your video as link

  1. Record your video
  2. Hold and drag on (we transfer website:
  3. Press on Get a link
  4. Wait until finishing the upload and copy the link.
  5. Past the link on (inter your video link table)
  6. Submit Now.

When you share your story with us:

for more assistance please contact:

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